Hello - First off - Thank you for creating this site. I found it because I had a question about serrapeptase - it has answered many of my questions about all kinds of subjects - and I found the explanations of where the meridians were and how to locate the points on me - valuable and painful! Ha Ha!
Ok - to the point. A year ago I was shown through the aid of a powerful tiny microscope - a cyst that is growing behind my eardrum - It has encased the hearing bones (I am now deaf in that ear although the cochlea still transmits vibration when a tuning fork is placed on my forehead).
The ENT states the only way to deal with this cyst (that acts like cancer and a tumor) is through an extremely invasive surgery - and that it needs to come out as it will continue to grow - doing more damage along the way - eventually it can eat the bone that separates the brain from the infected ear area and you end up with meningitis or staff infection.
I was told surgery was URGENT - freaked me right out ----but that has been over a year ago ---- so much for our speedy medical system in Canada! ---- actually, I am grateful as it gave me the time and opportunity to look for other ways of dealing with it. Yesterday the call came with a surgery date - I haven’t called back as I really don’t want it. Once they start cutting your head open, it appears that they go in for a 2nd look in about 6 months - and then about every 6 months after that you need to go to ENT’s to have it cleaned out and looked at to check to see if it has come back. It has a strong come back ratio as it is hard for them to get all of the cyst out of all those tiny places in there. So you can end up having operation after operation. So un-fun.
I said that I wanted to try other ways - ENT said good luck - I would be the first. Hmm. I suspect it just hasn’t been documented by western medicine - and it would be lovely to clear it up without an operation - and give others hope for an alternative way of dealing with it…
During the last few months I have used serrapetase in hopes of dissolving the cyst and thinning mucus, tumeric and vit c, - to reduce inflammation and assist my nose - colostrum as an upper respiratory aid, kombucha and kimchi for all the healthy bacteria ( we make our own so I have lots every day!) and breathing techniques as natural methods for dealing with my chronically stuffed up and yet runny nose —prior to this, I used a steroidal nose spray for about 8 years. I stopped cold turkey a few months back as it was no longer unstuffing me - I mostly felt a pressure in my head/sinuses. Makes me wonder if it caused the cyst.
I take time throughout the day to stimulate any point I find that hurts along what I “think” are the meridians - and some are so crazy painful - and yet it is also like a good hurt.
I have felt better - I can breathe through my nose most of the time now rather than being congested. I have had major tinnitus and that has decreased - not so loud and roaring now - and not constant.
I would like to know if you have ever “knowingly” treated anyone with this. Apparently it is very hard to detect because you are sick in other ways before they ever find it. I am almost 50 - a female - and have been very sick off and on throughout my life. It was like waves. I have had hearing loss from an elementary school age that increased to the deafness I have now. The ENT suspects it may be a congenital form but that is rare. I do have some abnormality up my nose that made him ask if I had broken it. ??? I don’t know. The passage is much narrower on right side. My ear canals are also very tiny.
As I stated earlier - I would love to avoid surgery - and make my ear/s healthy as can be - me as healthy as can be. I also feel good right now — it has been about 3 years of feeling bad/sick so I would like to ride this feeling to vibrant health.
I am open to going to an acupuncturist - ideally I would like a referral/reference from someone who knows they are good/cool/ knows their stuff - possibly has experience with this type of thing. How do I locate someone like that in my area?
There is a closed community on Facebook of about 2000 others from around the world who have cholesteatoma - and they would be thrilled to be offered hope. Their nickname for themselves is Franken"ears| - or stinky ears (thank goodness mine doesn’t smell!) Mostly they post pictures of their nasty ear operations! Yuck! And commiserate with each other. So hope would be welcome! An alternative to surgery would be amazing and incredible and so so so much better!
I know you don’t know my whole history but this is very wordy already - and I suspect I should be telling it to the person who will assist me with getting balanced.
I thank you in advance for the help and direction that you will give.
I’m glad I found your information!